A lot of you I’ve spoken with here have mentioned having symptoms of IBS or other gastrointestinal problems and I want to share this site with you: Eosinophilic Disorder Types. The navigation bar on the left side of the site will help you learn more about the disorders.
I came across this site while researching information about eosinophilia and it really got me thinking. We know that I have eosinophilia, which is too many eosinophils (one of the five white blood cells) in my peripheral blood, so wouldn’t that increase the chances that I have too many eosinophils in other parts of my body? Of course I first posed this question to my doctor some time ago and was told one has nothing to do with the other, but I never truly bought that. Now that I have a new doctor, perhaps we can re-visit the issue.
I wanted to share this with all of you because there is a chance that anyone who has the symptoms discussed on the site actually has one of the conditions and it is worth talking to your doctor about, at least. And let me remind everyone that, for years, doctors were taught to ignore eosinophils and had I never asked what specific blood cell was elevated, I would have never learned I have eosinophilia. Doctors are still learning just how damaging these little fighter cells can be, but they’ve gained a lot of understanding about what havoc they cause when they wind up in places they shouldn’t be.
Filed under: Fibromyalgia, Health, Life, chronic illness
Hi, I came across your blog by accident today. My son has EGID. I was wondering how high your peripheral eosinophils are? If they are only slightly elevated it indicates an allergic process going on in your body. If they are high it could suggest Hypereosinophilic Syndrome (HES). I think they consistantly have to be over 1500 for more than 6 months to be considered HES. This website is mainly for EGID, but it has some basic good information on HES. http://tinyurl.com/3xbdas
HTH
Traci… my highest count was only 11% (or 1100) and it never remains constant for very long, so I do not have HES. Mine tends to bounce between 7% and 11%. We’ve also ruled out the allergic process and parasites. Right now I’m stuck with “idiopathic” as my only means of describing it.
What was your son’s peripheral count when he was diagnosed with EGID? What tests did he have that led to his diagnosis?