About

For the last few years, I’ve been jumping through hoops and riding the wrong trains, all in the hope of getting an ever-elusive diagnosis for a chronic illness that has stolen away the life I once knew.  I’ve recently come to the relization that my diagnosis has probably been staring us in the face the whole time.  I’ve known for about two years now that I have a rare blood disorder called eosinophilia.  Actually, the condition itself isn’t so uncommon worldwide, as it is most often caused by parasites in under-developed countries and can occur in people with certain types of allergies.  What makes it rare in my case is that I have neither of those known causes.

While doctors in my area have at least heard of eosinophilia, no one seems to have the first clue about treating it.  Instead, I’ve been diagnosed with other conditions doctors are more familiar with and the eosinophilia has been ignored and left untreated.  When you have everyone from rheumatologists to neurologists and even hemotologists telling you it is “nothing to worry about,” you try and do just that… not worry.  However, the other diagnoses haven’t helped my situation and there are too many questions that remained unanswered.