He thinks that with all of my symptoms and based on the bloodwork it looks like I have some kind of rheumatic/autoimmune/connective tissue disease and that he recommends I go and see a rheumatologist again.

I also talked to him about all the nausea and things ive had going on lately and that my primary wants to do and upper endosopy and possibly a CT scan and he said that would be a good idea. He mentioned that its possible the eosinophils were coming from GI issues.

So basically im going to go back to my primary and see if we cant figure out this GI stuff and then eventually ill go to the rheumatologist. The problem is that autoimmune diseases can take years to diagnose, so who knows when they will figure it out. I’ve done my fair share of my own research and most things dont really fit, at least not yet anyways. Ill talk to my primary and see where she wants to go from here.

anyways for for the past ten years or so ive been on what feels like a slowly progressive downward spiral. Ive had many new issues popping up along the way and seems like when they show up many times they become chronic issues.

I have been diagnosed with FMS and chronic MPS (myofascial pain syndrome) within the last year but have been suffering for a long time. By the way if you dont know what MPS is you should really look it up because if you have FMS there is a good chance this pertains to you. I probably have CFS too but it seems to me like that diagnosis wouldnt even matter to my doctor since they dont do anything for you for that either.

When I was diagnosed last june of 2008 with FMS it was after having blood work finally done for my symptoms instead of just telling me i had poor posture. (yeah my muscles are too weak and fatigued to hold me in good posture) but anyways that was the first time any one looked into it further.

The blood work determined a positive RF factor and some borderline elevated inflammation so they sent me off to the rheumatologist who diagnosed me.

6months later they ran some more blood work for something else i forget what and called me. they said back in june when they had done the blood work my eoisinophil count was elevated but that can be for any number of reasons like you said and usually will go down on its own. but when they tested me again this time they noticed it was still elevated. so they called me in for more blood work to see if they could figure out what was causing it.

I have no allergies. I do have chronic sinus pain but no other issues there that i know of. They did a stool sample to rule out parasites even though this would be an unlikely cause.

The eosinophil count was still elevated and i tested positive for the Epstein Barr virus and looked like I was in remission and had been infected some time in the spring. My doctor then decided we would do more blood work in another 2 months to make sure the eosinophil count had gone down.

2 months later the count had not gone down..or at least hadnt gone down enough. She said by now if it had been any virus it should have come down by now and was referring me to the hematologist. she told me that at that point she was not concerned, and that its possible that this elevation is just whats “normal for me”. But she wanted to cover all the bases just to be sure.

So another month or two later im finally seen at the hematologist (they were all booked up apparently). After telling him about my muscle pain, fatigue, nausea, abdominal tenderness, some weight loss and etc he explained to me that it could just be an allergy to something like a medication or seasonal or food allergies. Or that it could be a connective tissue or muscular disease (which is what he is leaning towards). He said that he doesnt feel its a blood disease like leukemia or anything like that because it is only mildly elevated.

He ordered a ton of blood work for me and wants to see me back at the end of this month to go over everything. I have a list of the blood tests he ordered and it looks to me he is checking everything he should be. I hope he can help me and figure out something but i do have my doubts.

Also my grandmother died of leukemia so that is a little worrisome but i dont feel its leukemia yet. I feel like i have some sort of muscle disease that is turning my muscles into rock. Many muscles in my body have “muscle knots” or “trigger points” but im told these can be worked out but i have never once had a knot go away. only more created.

Im sorry that this is so long but I always feel the need to explain as clearly as possible. I am checking the box to be notified of follow-up comments. Thanks for reading!

ErinAnn

oh yea and I will REALLY post a follow up of what happens with the hematologist.